[Source: Research & Innovation] E-Rare, the ERA-Net for Research Programmes on Rare Diseases will organize a workshop on data sharing and harmonization in order to promote these issues in the rare disease research community. The workshop will take place on the 4th of May 2017 in Berlin, Germany at the Ramada Hotel (Alexanderplatz). The conference sessions will be composed of plenary session, round table discussion and hands on session to discuss the following topics in relation to rare diseases research: • Application of the data sharing policies and recommendations by the researchers • Data sharing and harmonization tools and platforms • Integrating, tools, platforms and patients participation: what is desirable and how to get there? • « Hands on » experience. The number of places is limited! The deadline for registration is 7 of April 2017.
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